Links


AMERICAN PARKINSON DISEASE ASSOCIATION

  • The American Parkinson Disease Association, Inc. Was founded to "ease the burden and find a cure" for Parkinson's disease. The organization focuses its energies on research, patient support, education and raising public awareness of disease. For more information call 800-223-2732. more

AREA AGENCIES ON AGING

  • Area Agencies on Aging respond to the needs of the elderly in the communities they serve. To find the agency in your county.more

CARE MANAGER

  • Care Manager explains the role of the Care Manager and provides assistance in locating area care managers. more

CAREGIVER STRESS

  • Caregiver Stress is an on-line resource for family caregivers provided by Home Instead Senior Care. more

CLINICAL TRIALS

  • For information about current clinical trials - more (www.clinicaltrials.gov)

COMPLEMENTARY THERAPIES

  • National Institutes of Health - National Center for Complementary and Alternative Medicine (NCCAM). more

COURAGEOUS STEPS FOR PARKINSON'S:

  • Courageous Steps for Parkinson’s is a 501(c)(3), local non-profit organization. Our goal is to raise awareness of this disease and much needed funding for research to hopefully find a cure. more (www.courageoussteps.com)

EXERCISE AND FITNESS

  • Sit and Be Fit - more
  • Parkinson Disease and the Art of Moving - more
  • Exercise: A Guide from the National Institute on Aging - more
  • Motivating Moves for People with Parkinson's - more
  • Functional Aquatic Fitness Training for Parkinson's Disease (DVD) - more

LEWY BODY DEMENTIA ASSOCIATION

  • The LBDA provides comprehensive scientific, clinical and caregiver information on Lewy body dementias (LBD) also commonly referred to as dementia with Lewy bodies (DLB). more

LOTS A HELPING HANDS

  • Lots a Helping Hands has joined with National Family Caregivers Association to provide web based volunteer coordination service. more

MICHAEL J. FOX FOUNDATION

  • The Micheal J. Fox Foundation for Parkinson's research is dedicated to ensuring the development of a cure for Parkinson's disease within this decade through an aggressively funded research agenda. more

NATIONAL ALLIANCE FOR CAREGIVING

  • National Alliance For Caregiving is dedicated to providing support to family caregivers and the professionals who help them and to increasing public awareness of issues facing family care giving. more

NATIONAL FAMILY CAREGIVER ASSOCIATION

  • The National Family Caregivers Association (NFCA) exists to support family caregivers and to speak out publicly for caregivers' needs. Through its services in the areas of education and information, support and validation, public awareness and advocacy, NFCA strives to minimize the disparity between a caregiver's quality of life and that of mainstream Americans. more

NATIONAL PARKINSON FOUNDATION

  • The National Parkinson Foundation(NPF) supports Parkinson-related research, patient care, education, training, and outreach. For more information call 800-327-4345. more

NUTRITION

  • Five Star Nutrition – Nutrition and Parkinson Disease information- more

PARKINSON'S ACTION NETWORK

  • The Parkinson Action Network (PAN) is the unified voice. For more information call 800-850-4726 or 202-638-4101. more

THE PARKINSON ALLIANCE

  • The Parkinson Alliance is a national non-profit organization dedicated to raising funds to help finance the most promising research to find the cause and cure for Parkinson's disease. For more information call 800-379-8440. more

THE PARKINSON'S DISEASE FOUNDATION

  • The Parkinson's Disease Foundation (PDF) is a leading national presence in Parkinson's disease research, education and public advocacy. You can also contact them and request their booklet on Web Resources for People With Parkinson's. For more information call 800-457-6676 or 212-923-4700. more

THE PARKINSON'S RECOVERY PROJECT

  • The Parkinson's Recovery Project is a non-profit organization dedicated to disseminating information about treatments of Parkinson's disease using modalities of Oriental medicine. more

PD INDEX: A DIRECTORY TO PARKINSON'S DISEASE INFORMATION ON THE INTERNET

  • PD Index is an organized collection of references or "links" to internet resources that provide information about Parkinson's disease. more

PDtrials

  • PDtrials provides up-to-date information for clinical trials. more (www.clinicaltrials.gov)

REHABILITATION THERAPIES

  • American Physical Therapy Association (APTA) - more (www.apta.org)
  • American Occupational Therapy Association (AOTA) - more (www.aota.org)
  • American Speech and Hearing Association (ASHA) - more (www.asha.org)
  • Lee Silverman Voice Treatment (LSVT) - more (www.lsvt.org)

WE MOVE

  • WE MOVE is a nonprofit organization providing a comprehensive resource for movement disorder information. more

WebMD

  • WebMD provides valuable health information, tools for managing your health, and support to those who seek information. more

WELL SPOUSE FOUNDATION

  • This non-profit, membership organization provides support to wives, husbands and partners of chronically ill and/or disabled people. Here you can sign up for a caregiving mentor, or become a mentor for a new caregiver. more

WORLD PARKINSON CONGRESS

  • The World Parkinson Congress Inc. is a nonprofit organization dedicated to providing an international forum for the latest scientific discoveries, medical practices and caregiver initiatives related to Parkinson's disease. more

YOUNG ONSET PARKINSON'S ASSOCIATION

  • Young Onset Parkinsons Association - more

BOOK LIST

For additional information contact the Parkinson Disease Foundation and request their booklet, Web Resources For People With Parkinson's.